Oct. 4, 2024

Episode 40: Meetup Session- Post Surgery Recovery. Our (VERY!) Candid Discussion.

Episode 40: Meetup Session- Post Surgery Recovery. Our (VERY!) Candid  Discussion.
Episode 40: Meetup Session- Post Surgery Recovery. Our (VERY!) Candid  Discussion.
Imperfect Heart
Episode 40: Meetup Session- Post Surgery Recovery. Our (VERY!) Candid Discussion.

What if the very medication meant to ease your post-surgery pain ends up causing a whole new set of problems? This episode pulls back the curtain on the real-life challenges of post-surgery recovery, starting with the digestive issues caused by pain me...

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What if the very medication meant to ease your post-surgery pain ends up causing a whole new set of problems? This episode pulls back the curtain on the real-life challenges of post-surgery recovery, starting with the digestive issues caused by pain medications like oxycodone. You’ll hear firsthand accounts of the shift from relying on narcotics to managing pain with ibuprofen & Tylenol to minimize constipation, including the embarrassing and frustrating moments that come with it. We explore not just the physical ramifications but the emotional toll of trying to balance effective pain relief with uncomfortable side effects.

Celebrate the small yet significant victories of recovery with us, from walking around the block to taking a shower independently, or just getting a shirt on or off! We dive into the emotional rollercoaster that accompanies healing, marked by fluctuating health, unexpected setbacks, and the importance of mental health support. Sharing practical tips for managing back pain and finding comfortable sleep arrangements, this episode underscores the need for patience and resilience. Each personal story highlights the non-linear nature of recovery, reminding listeners that healing is a process with both triumphs and setbacks. The trendline is not linear but as long as it continues upward, that’s a good thing.

Finally, join us as we explore the path to reclaiming normalcy during cardiac rehabilitation and the quest for post-hospital independence. Hear about the emotional and physical struggles faced in rehab, the anxious moments of driving again, and the cautious steps taken to regain independence. Personal stories bring to life the feelings of vulnerability and reliance on others, providing reassurance and support to anyone on this challenging journey. Listen in for a candid, heartfelt discussion that aims to provide hope and encouragement to those navigating the difficult path of recovery. As the host, I have to admit reliving this experience had it’s highs and lows but having the discussion amongst friends who have been through the same things, was not only comforting, but sad to see it end. This was the last session of the day before everyone left to return home to wherever that was. Putting the episode together reminded me again that we need others to support us, we need to share our stories and there is nothing like being together in-person to discuss our situations. Thank you all again for your participation and I sincerely hope that as you listen, you get some comfort, hope and awareness that we are all unique individuals and that everyone who has the surgery is going to have a different outcome than the person before or after them. Continued success on your journeys and welcome each day with positivity and gratitude.

(00:00) Post-Surgery Recovery and Pain Management

Post-surgery experiences with pain management, digestive challenges, and balancing medication side effects while recovering.

(11:23) Challenges and Triumphs in Recovery

Recovery after a medical procedure involves celebrating small victories, dealing with setbacks, and seeking mental health support.

(21:34) Challenges of Cardiac Rehab

Challenges and experiences in cardiac rehab and recovery, including delayed start, physical struggles, and milestones achieved.

(27:02) Adjusting to Post-Hospital Independence

Recovery after a medical event involves regaining independence, facing fears, and taking cautious steps towards normalcy.

SPEAKER_01

Welcome to Imperfect Heart, a place for you to join me, Jeff Holden, in conversations, discussions, and dialogue about our hearts and the impact myocardial bridges have on them. We'll talk with healthcare professionals, those in related fields that support our condition, and others just like us with stories of their myocardial bridge experiences. It's my intention for this content to inform, educate, entertain, and even motivate or inspire you in your personal journey on dealing with a myocardial bridge. Most importantly is to have you leave each episode with hope, knowing you're not alone and that what you're experiencing is real. I'm pleased to bring you the last and final segment of the September meetup of Imperfect Hearters. While the audio may be a little rough, the content is absolutely incredible, as this is a session where we actually talked about the things, well, we don't usually talk about. I think you'll enjoy the episode. I look forward to your feedback, and I now invite you into the last and final session of the Imperfect Heart Meetup in September of 2024. So I'll start with a couple of things that I noticed. Obviously, I was on the medication post-surgery. You just take what they tell you to get, you know, what they give you. And it's it's okay with it. Pain meds, I was off, you know, right under the hospital except for I think one day I said, I gotta do, I gotta take the oxy. Yeah.

SPEAKER_00

And as I've learned, probably not bad to stay on them a little bit longer.

SPEAKER_01

It's fine.

SPEAKER_00

I just said overachiever.

SPEAKER_05

I know it's learned.

SPEAKER_00

So listen to your character, right?

SPEAKER_01

And wife, right? And wife. But from a standpoint digestively, it screws me up so bad.

SPEAKER_06

Yeah.

SPEAKER_01

I mean, I literally came home from the hospital. Funny, I'm gonna share the story. Okay, this is embarrassing, but I'm gonna share the story. So I'm in the hospital. You're on the drugs, I can't go. I want to go. I gotta go. And I'm telling them, I gotta go. And they're like, okay, I get there and I'm still in the ICU. I had another procedure post that was all part of this condition, but not related to the heart. So the the sternotomy for me was a little more extreme. Anyhow, I'm like, I gotta go, I gotta, and I know I have to go, but I feel terrible, I'm all back up, blah, blah, blah. So they go, okay. I said, okay, well, I got gas, and I'll never forget it because it sticks in my hand up. They go, gas is good. Yeah, it depends on who you're around, whether or not that's good.

SPEAKER_02

So it's always good. That's right.

SPEAKER_00

And they said, it's something's happening.

SPEAKER_01

Okay, so nothing happens, right? And they go, Oh, we can take care of this. We've got the Stanford swoosh. We're gonna do that. Well, the Stanford swoosh didn't work. And so I'm like, God, I'm gonna just give us all away. And I'm not mobile yet. I can get from the bed to the little porta body thing in the room. We can't, I can't get up and walk to the restroom. So I'm sitting on this little porta body thing thing, and then the nurse is checking in. And the fire alarm in the hospital comes off.

SPEAKER_03

Oh my god. So did it scare something out of you?

SPEAKER_00

Everybody left. And you're left. I can't get myself up to get me back to bed, I can't do anything. I'm gonna sit there like that. This is crazy and funny when they came back in, they go, Oh my gosh, so not only was it unproductive, it was embarrassing, and it was like, what's going on here?

SPEAKER_01

Oh my god. Runs its course at some point.

SPEAKER_00

Oh my god.

SPEAKER_01

But I get home and I remember another incident where I was so afraid. Uh I get to look at you, and I don't know how hard is. It's gotta be how hard it's pushed, right?

SPEAKER_00

How hard can I push?

SPEAKER_01

I gotta go and I gotta go, and I'm taking everything they tell you to take to loosen everything up and soften everything up, and it just wasn't working. And then of course you finally get to that point where it's just I'm gonna make something out, it doesn't matter what you're gonna do. It's gotta go. And then you're thinking about the sternotomy. You're not worried about the BM, you're worried about the sternotomy now. No, pull this thing apart and push this apart. And yeah, and I share that just for the benefit of anybody who's listening to, just okay, you're okay. You're fine.

SPEAKER_04

Focus on their mind.

SPEAKER_03

I'm sharing something that is I know other people haven't, but we can talk about it. Any surgery or something. That's right.

SPEAKER_04

It was one of the worst experiences. I couldn't decide whether or not the pain from my chest was worse or the pain from not being able to go to the bathroom. And at one point that outweighed the pain in the chest, and so it was that it was difficult.

SPEAKER_01

Well, in your case, you weren't close up.

SPEAKER_04

Yeah, really, really painful. And I remember calling in like that next week, like, this is horrible. What are we gonna do? I'm so sick. I don't even remember. We tried everything. We tried prune juice, we tried the meds that they gave me. I don't remember, and it took days, days. Um yeah, very painful.

SPEAKER_02

90% of it.

SPEAKER_08

Like slows everything. From non-activity, yeah. We'll just think slower.

SPEAKER_04

So I ended up doing ibuprofen instead. Yeah, it's what I was saying.

SPEAKER_06

Yeah, ten of them at once.

SPEAKER_01

Yeah, and and on on that note again, for the benefit of those listening, you you got to the ibuprofen as quickly as you could.

SPEAKER_04

As quickly as I could.

SPEAKER_01

Like I said, I had I had one incidence where I reluctantly went to the oxy, but probably would have been okay if you know you heal a little bit easier, you're less likely to you know stay so restrictive because you feel everything and they want you to move.

SPEAKER_03

Does all that stuff uh like painkillers upset your stomach?

SPEAKER_04

I would say like the oxy really helped with like the sleeping because you're in so much pain, and I'm sure you experienced that. Like you can't sleep because you're under so much stress from the pain. So um it did help. Like for me, I would take like it would come in like four-hour waves. So like I would take the oxygen, I could sleep for four hours, and then I'd wake up and I'd be like, okay, and then the pain would come back really bad. Um, but yeah, I I did that for about two days at home and I just couldn't do an oxygen anymore.

SPEAKER_01

You were you were like pain free, or did you take the bed?

SPEAKER_07

I was I was just more sore. I didn't, I didn't even want well, they kind of forced me. I agreed to have in the hospital because it said for them to stop bugging. But um I when I got home after they took the pain or the nerve block cathode, I was afraid I was gonna be in pain, but I didn't really get in pain. It was just like really sore. So I would say that, and I think I took half of maybe twice when I was at I was at home yet. Because my heart the hardest thing was I was I couldn't get up from like even though I was kind of elevated, but I couldn't get up. And I know you're supposed to roll, but I couldn't roll, so I don't like to take the pain medicine because it that does the same thing and it makes me also very nausey. I felt like that was the nausea and vomiting the day of surgery was the worst. That's what made me in pain. And then after that I said no more.

SPEAKER_03

Like how do you sleep after surgery?

SPEAKER_06

Well, usually elevated, right? Or on a wedge or on an incline of some sort, yes. Or some people sleep in recliners. I slept on on my bed flat, I was fine with just pillows. You were able to go flat right away?

unknown

No.

SPEAKER_03

Wow.

SPEAKER_06

But but a lot of people describe getting one of those wedges, you're putting it under the prop themselves up.

SPEAKER_03

How do you get out of bed?

SPEAKER_06

You roll on your side like this, and then you get up with your legs.

SPEAKER_01

Yeah, stick or two.

SPEAKER_06

Yeah, two.

SPEAKER_01

Yeah, there's they show you the procedure in the hospital just because you can't put your arms out.

SPEAKER_06

No, you can't push down on the bed and just keep your arms in and roll. Yeah. You have them feel like how your core muscles could be for you. Yeah, practice.

SPEAKER_01

Core and legs. They they they suggest those are the two most important in in terms of being able to heal quickly. How about once you got out, you get home, and we all know sternal precaution. This is for anybody that has the sternotity. You're in the can, you know, you gotta keep your elbows in. I laughed when you were describing. So you you were good with it, Linda. What'd you do? How did you navigate?

SPEAKER_06

Well, yeah, with my I kept my elbows at my side most of the time and just yeah, tried to move around and do things this way. And I got out a lot of laundry and I got out of a lot of uh cooking by doing that. Um dishwasher, dishwasher, vacuuming.

SPEAKER_01

Yes, yeah.

SPEAKER_06

Just how long before you realized you could well you can you can come up straight, of course, but you can't, you know, it's hard to do things like well, opening a closet door or opening the refrigerator door or something that took. I would I would stand up and walk back towards. So I wouldn't, you know, I wasn't pushing or pulling anything too hard with my arms. But how long do they want you to do that? I mean, it gradually gets better, maybe four to six weeks. That long. Oh yeah. No mole in the lawn. No mole in the lawn. Yeah.

SPEAKER_04

Just because of my experience, I mean go as long as possible. And then I would say, like, if they say four to six weeks, times that by two or whatever's comfortable. Everyone's different in recovery.

SPEAKER_08

So yeah, yeah. And did you say you had the block, a nerve block for pain? Did you guys all have that? Or I declined a nerve block.

SPEAKER_06

They described it to me, and I started thinking, what if I am paralyzed or something? I have a successful surgery. So I said, no, I don't have nerve block.

SPEAKER_03

Is it like an epidural?

SPEAKER_06

Yeah, yes. Well, that's but they put it somewhere else.

SPEAKER_02

Right. No, I don't want that. Remember this case, you can bring it into me a little longer and it would have been like big otherwise. Woke up kind of waiting, and they kept saying you need to breathe, and she falls asleep. Um, that's that's that individual thing. Someone else that might be the perfect solution, but it just didn't work out, but you know, it's it's what it was. Yeah, and uh because he hadn't on the block. And he had the block, they wouldn't give him the method out of who knows. You know, just everything else a way it can work out, it's never always gonna be the same.

SPEAKER_01

Right in in the process of recovery, first steps back to normalcy. What did you guys experience as you're okay? Now I'm getting it's time to start doing stuff. I gotta walk, I gotta get up. I mean, I really gotta walk, not just around the house, I gotta get out. What went through your heads and what did you do?

SPEAKER_06

I celebrated each small milestone. I can remember when we were in the hotel getting out and just walking around the block. No, the first day, just getting out and sitting in the sunshine in my house coat. This is so great. And then the next day I'm alive, yeah. I'm alive and it's sunny. And the next day getting out and walking around the block, and I was just grinning here. It's like I can walk around the block on walks and then celebrating the little things like I could take a shower and wash my hair by myself today. That was that was yeah, you never got carefully.

SPEAKER_02

You can do it. I'm interjecting again. She's talking like it's like this. Oh, I got better every day. That's the I remember it. There's definitely these stuff back days, you know. Because literally, yeah, the one day up there, the second day at home, you know, almost passing out walking back from the breakfast, just in the hotel, walking from the breakfast area to the ring. It's like, I'm really faint, sit down right now because a little game just the heart and the medicine to be adjusted back off.

SPEAKER_06

Yeah, too much meditation.

SPEAKER_02

And we started walking, we were asked to stick around Stanford for a couple or 10 days after surgery. So that's fine. We've had a hotel. But we wanted to get out, it's warm, it's a warm day. So we would not walk around, but walk around the park and thought, oh, I feel not so good. You know, there were definitely some times where just it wasn't the chest pain, it was like just whitehead, weakness, weak, or just kind of faint. And and it in those days she's thinking, oh no, I really feel terrible, what's going on?

unknown

Okay.

SPEAKER_02

And then another day I'm much better. And that's I think that's really important. It really is. There's that it's a fluctuating thing. It's not like I'm just getting better every day. I mean, yeah, in the big picture, it is, but day to day, be prepared. That's not always gonna be that way. Be sensitive to be all kind of that.

SPEAKER_04

I would say for me, like it was a really emotional recovery, just because like I had been used to such a different lifestyle before, and like it just it it wasn't coming fast enough. Like I really thought, like, oh, I'm gonna get the surgery, and like I'm gonna get back to working out and I'm gonna be strong again, and like I kept telling myself a superhero. Um, but like it wasn't like that, and like you just said, like there were good days, there was bad days, getting excited about washing my hair. Maybe it was almost two or three weeks after, and I was like, Oh, you're gonna be a little bit more than a price, you know. Yeah, I would say for every good, there was like then a couple days of back, so very long process, and then just trying to stay positive all the time. Like I did work with a therapist, PTSD, and I worked with her for a whole year after that was really beneficial because I just I would I was depressed all the time in my metal scheme, and I'm not sure about all of you, but they did explain that there would be a sense of like just sadness and depression through.

SPEAKER_03

I heard that happened, yeah.

SPEAKER_04

Um, and I didn't know it until I was in it, and I was like, oh, this is so long, this is it in so long, right? But I would say I would get excited if I could go to Trader Joe's with like my mom or to Target just for like simple errands, just because like I hadn't seen the light of day in a while. Yeah, and but then I had a really hard time because um I had weight gain that occurred quite rapidly throughout this period. I've I've gained like 50 pounds throughout this whole thing, and so that that was also another thing. So I think it's come with like a lot. I don't know, there's so much to the recovery.

SPEAKER_01

Um I remember some of the things sleeping, the difficulty. Where's comfortable? I had a rig that I built on the couch, and I'm like, what is this back pain? Is it it's not doesn't feel like the heart, it's this just stabbing in between the shoulder blades pain that I couldn't you know get rid of. Heating pad was miraculous to me. It took me like a week to figure out a heating pad. It's a good idea. Uh but once we got the heating pad, it was from Sarah, who said, tell me get a heating pad. Uh so we so we got the heating pad, and it was so much better at that point. And I'm looking, I see you looking at me. I think you were telling me to get the heating pad. Yes. But that made that made such a difference. And then again, you have that that cyclical, oh okay, that's good. I was able to sleep that night. Um I I do remember one thing that was it was for real. I mean our house is two stories, so Teresa would go upstairs to bed and go to sleep, and I'd stay on the couch because I couldn't lay down or anything yet. It was it probably took me two weeks to where I was really comfortable laying down in the bed, and it felt okay. And she says, Are you still up? I said, Yeah, I said she goes, Well, why don't you try coming up to bed? And I said, No, I just need to stay awake. Why do you need to stay awake? Because I'm afraid if I go to sleep, I mean how my dungeon. And I think that's that case of depression where you're going, yeah, uh yeah, I don't worry about this. You know, everything was fine, everything was going fine, I felt good. But you know, back to those days of cyclicality. You know, you go out, you do your walk, and it's a good day, and everything feels fine, and then the next day you're cursing up and down because it's like it felt so good yesterday. You know, everything just felt so much better, and then today, why the hell doesn't feel the same and better on top of it? And then you start looking for reasons.

SPEAKER_06

What did I do yesterday that made me feel worse today? Did I forget my medicines? Did I not eat right? Am I dehydrated? Yeah, yeah. Did any of you guys get pericarditis? Yeah.

SPEAKER_03

Oh, you did. I did. It's common, isn't it? Is that because you're messing with the lining of the heart? Is that common?

SPEAKER_01

I don't know how common it is. It seems that I hear about it more on the robotic surgeries. Oh, really? Yes. Don't know why. Jeremy had it. Uh he had a real rough case of it. Another gentleman had it. And I can I can think of five people like right off the top of my head right now that Paul ended up with pericardium had it too.

SPEAKER_04

It was I found out this year, it was notated three different times.

SPEAKER_03

So I asked Boyd about it. He goes, I don't know why it happens. He he couldn't give me an answer. I'm like, that's because people don't know why it happens. It's just it just happened.

SPEAKER_06

I mean you have to try the pericardium to get to the heart, and so that and they leave the pericardium open generally, and so it's okay around and something that gets irritated. Oh, okay.

SPEAKER_04

Yeah, they they don't know why it happened with me. So I we're not supposed to be opened up.

SPEAKER_03

Right, right, yeah. Protected.

SPEAKER_04

Yeah.

SPEAKER_01

Dr. Balkey thought it maybe in the robotic cases, some people have a sense of sensitivity to the nitrous oxide that they pump in, and it might inflame pericardium. Because he's questions it too, he's really don't know about it. That may be what it is, and we can't identify that as an allergy per se. It just happens. So yeah, I do see that fairly common. How about as you start at the next phase? You get through that first six weeks of we're all strengthening in here. So that first six weeks of strenoty start to feel pretty good. You start to move some things out, and and now you're walking. And did anybody cheat and drive? No, it wasn't lost. You did.

SPEAKER_04

I I made it like week seven, and I was like, I can't, I gotta go to Target.

SPEAKER_03

I was like waiting earlier than we're gonna do. When I'm here in Florida eight weeks, I'm gonna go, I don't know, I think it was like more than five days.

SPEAKER_01

No, it was like three weeks.

SPEAKER_00

Three weeks? Yeah. Wow.

SPEAKER_01

Before even over a year. So I think but here's what I realized. You can't get your hand over hand on a screen. Yeah. What about the turtles? That's what I'm saying.

SPEAKER_08

Yeah.

SPEAKER_01

As soon as I went to do this, it was like, oh yeah. And if you had to do it a basic thing over your screen, you would have it's so so it is legit. Don't try.

SPEAKER_04

I did regret the first time I got in the car, and I was like, oh, we shouldn't have done it.

SPEAKER_01

Right. I was just so surprised. It's like, wow, you really can't do that. So you get, I'm sure everybody did their walking expectation. How did that go?

SPEAKER_04

I was getting really frustrated. I would suggest maybe not being on the support page during a recovery.

SPEAKER_08

It's probably a good idea.

SPEAKER_04

Because it's um it's almost a little defeating because like even Jeff, like he his recovery was so different from mine. Like I would say I'm so slow, and I would get really upset that like I wasn't where like Jeff had been at the hardware. Sarah had been at that mark, and I start comparing ages and cases, and like where was I at? So I like I'd get really emotional after my walks, and like instead of like being paused, I was like, Yes, I I did it. I was like, You used to be able to work a lot, like this is terrible. So I would be able to make it like down the street and back, and where I live, there's a lot of hills, so it was like down a hill, back up a hill. So it was a lot just to get down to the corner and then back for a while. So that was just my goal to like make it down and back like a few times, and then like maybe five times during that time. So and I didn't cardiac rehab didn't start until later, so after I went back to work, so not until I get my 90-day mark, and then they said is that when they yeah, for me, they had me start cardiac rehab later, and that I I will say I didn't progress like I thought I was going to, and there was a lot of tears during cardiac rehab for me. There was people who were much older than me that had just had open heart surgery where they've gone really fast, and I could barely go like two, like whatever the like on a level two at like a 1.5 incline for 20 minutes without feeling like I was going to pass out, and then I would get through my sessions. I was doing about 40 minutes in the beginning, very slow, and then afterwards I would start to pass out. So I we don't know what was causing it, but cardiac rehab was documenting everything, and it was like that for the whole so yeah. For me, it was difficult, it was not as positive as I was hoping.

SPEAKER_01

What important that you did because you couldn't have done it on your own.

SPEAKER_04

No, no, I had to be there even now. Like they have suggested if I want to be under supervision, like I can be, it's optional at this point, but I do have to be really careful. Sure. Yeah, there was a lot going on. We figured out a lot during that time.

SPEAKER_01

So Kelly, did you do cardiac regain?

SPEAKER_07

Yes, six weeks after. One thing that I forget now. A couple days after, well, maybe yeah, maybe five days after, my heart rate was high or than normal. And I'm really sensitive to that because I've had a lot of arrhythmias. And I actually went to the ER at Stanford because I had one of those you know blood pressure things on your wrist, and it wouldn't read my heart rate, it would just be like flashy and like arrhythmia. So I was like, that's weird. So I went in and got checked out, and they said it was just normal after surgery that your heart rate is high. And so actually now I have a high, like kind of normal resting heart rate. Yeah, it's about maybe it could get to 90, but it's usually like 100.

SPEAKER_02

You're resting days, yeah.

SPEAKER_07

Um after surgery, and I gotten used to it, but at first it was hard for me because I wasn't used to that, and I always think oh, my heart rate's high. And I forget about it now to even mention that, but that wasn't kind of an issue that scared me because it would kind of make me dizzy. And so when I would go to the cardiac rehab, I would have a high heart rate. But then I have to tell myself, no, it's okay, like it's not like your other one. So that was the issue. And I was, you know, the biggest thing was shortness of of breath after surgery, but that was this normal because I had a partially collapsed lung, even though they said it was normal. So it took a while to get it back. Get it back. So I went back to work after um four months, and at that point I was like, okay, I'm breathing fine. I was used to the kind of fast working.

SPEAKER_01

Yeah, that's not uncommon. Yeah. They collapse a long or something.

SPEAKER_07

I just has to reinflate. I didn't know that. Who was on pump? I was um you were on pump on pump?

SPEAKER_00

Not on pump.

SPEAKER_01

I think I gained an hour of life because I was not beating for an hour. The positive side there.

SPEAKER_04

What's the real story?

SPEAKER_01

On your your next steps of recovery. And all of us went through the you know, the steps, the walking. I just remember Teresa's a big walker, so we would go out and walk, and you know, the first goal was just to be able to keep up with her, and then it was to be able to keep up with her for some distance and then be able to go faster than her on the wall, you know, up and down the hill. And you know, we're doing good. You know, now I'm I'm good. But it's those little those milestones, and then the days that suck because you can't do what you did the day before doesn't make sense because progression, at least physically, typically, you go to the gym, the next day's a little bit better, and then progresses on a positive trend line literally, whereas this is you know, there's there's dips on that trend line, and I think it's important every understanding that's going to happen. Once you got to your external precautions where it's okay, now you can be kind of normal, do what you need to just be a little careful. What was the first thing you did? I was playing with the dog too soon.

SPEAKER_04

And I wasn't supposed to be lifting her, and I love to hold my dog. She's so cute. And I wasn't supposed to be doing that, and I did. And so that was like the big thing. I really wanted to play with my dog. I went back to work too soon. I went back at three months, and I was like, I'm ready. I can do this because like I was feeling better on those days, but then like I didn't even take out that like oh, for every like two good days, I was asleep for like three after that.

SPEAKER_01

So what you count when you got to where the first thing you remember doing now. Did Danny wasn't really scared to do that thing that you hadn't done that you were like, if I'm gonna do this now, I'm how am I? Am I really okay to do it? Yeah, driving.

SPEAKER_07

I waited two months, that was good. Because the nurses scared me at Stanford with that. So they said, and then don't out. And they had me, I always had a ride in the backseat, which I felt like a kid because it's such a trip. Yeah, kill me. So my dad heard that and was in the backseat for a long time.

SPEAKER_04

She had been driving her aunt say there's nothing like being a grown woman in the back in the car while your parents drive.

SPEAKER_06

I was thinking of driving Miss Daisy.

SPEAKER_01

I remember we were coming out of the hospital, and he didn't want to be sitting that long. He's too long to sit. So we stopped at a Starbucks about the halfway point, I get out. It's not the best neighborhood. And here I am.

SPEAKER_05

Oh my god.

SPEAKER_01

I normally I wouldn't get out of the car, I wouldn't pick anything up. If somebody approached me, uh, yeah, you get a flight, you're talking to or run. Or run. And I'm standing there, Teresa, right at the store, and I'm standing there going, oh my gosh, if something happens, I can't do anything. I can't protect the car, I can't protect myself. And it was one of the most vulnerable positions I've ever found myself in. That day leaving the hospital going, whoa, I am totally incapable of doing anything at this point if I needed to do it. Well, right about here is where the session started to wrap up, and it was time to go after a long, long day. So I hope you enjoyed it. We look forward to doing it again at some point in the future. And I appreciate everybody's participation in the first ever Imperfect Heart meetup. Thank you. Thank you for listening to Imperfect Heart. It's my hope that this information helped in some way to improve your situation or will help you better understand this condition. More importantly, that it gives you hope through stories that there is help and you most certainly are not alone. If you've been diagnosed with a myocardial bridge, please be sure to join the private Facebook group, Myocardial Bridge Support Group. For more information about our program or to reach me directly, visit the website, myimperfectheart.com. If you like what you heard today, please give a positive review, thumbs up, high five, whatever your app likes. And be sure to share with everyone important to you so they understand what it is you're dealing with. Please subscribe as well. Welcome each day with gratitude and positivity. The views and opinions expressed in this program are solely those of the host and the guest and are not intended to provide, nor are they a suitable substitute for professional care by a doctor, therapist, mental health professional, or other qualified medical professional.